‘Leaving No one Behind’. Achieving and Supporting Disability Inclusion and Rights
Date: Saturday 18th November 2017
Registration 9.30am
Event Closes 4.30pm
Venue: Curzon Building, Cardigan Street, B4 7BD
In collaboration with World Health Innovative Summit, Include Me TOO and Birmingham City University
This event marks the Convention on the Rights of Persons with Disabilities 10th anniversary and the 60th anniversary of the Human Rights Declaration. The event will have speakers presenting on a range of topics, various panels for discussions, workshops all aiming to share solutions, insights and sharing learning to achieve the future we all aim to achieve a Disability, Inclusive, and Safe Society for All.
Speakers:
Kamran Mallick
Kamran Mallick joined Disability Rights UK as its Chief Executive in July 2017. He is the former Chief Executive of Action on Disability, the Hammersmith-based disability organisation, where he worked for 12 years.
Kamran has also worked for the spinal injury charity Aspire as well as running his own business.
He serves on the boards of Inclusion London and the Lyric Hammersmith, and is chair of Candoco dance company. He is also a member of Transport for London’s Independent Disability Advisory Group.
Carly Jones is British filmmaker and Autism advocate and also the mother of 3 daughters 2 of whom are Autistic .
Carly herself was diagnosed as Autistic by the National Autistic society's Lorna Wing Centre after her daughters in her 30s.
Until recent years there was very little understanding of Autism and females and Carly used her life long interest and passion for media to raise awareness of Autistic females and try and erode the stigma of being Autistic. The Documentary "Epidemic of Knowledge " following her families multiple female diagnoses was screened at Cannes Film festival ,has won many Disability and women's issues awards globally and is this year being screened at the UN offices of Indian to raise awareness in hard to reach communities. Carly's Advocacy work is varied includes discussing Autism and those left behind at the House of Commons , the United Nations Geneva ,The world Human rightsrights forumforum Marrakesh and for BBC Three and Channel 4 . She has recently written and published a free online course on safeguarding for Autistic girls out of education who miss out of PHSE lessons her long term aim is that every female who needs a diagnosis and support receives them as human right as even a clinically "mild " diagnosis in no way ensures a mild life experience for those left behind .Her suggestions on how to safeguard Autistic women and girls have recently been accepted and published by the UK government women's and equality committee .Carly is currently excitingly preparing to participate in the BBC Class Act project for Disabled actors a to raise the profile a of actors a with disabilities in media which she feels is a wonderful reflection of the progress made for inclusion in the UK .The Jo Cox Loneliness commission and Scopes work shows that Media is a enormous agent of change in create more understanding in Disabled people’s reality’s when it’s considered and accessible in fictional TV shows and dramas. Carly will be joining us on the 18thNovember having just arrived home from the United Nations to see the ratification of CEDAWS article 19 which she submitted evidence too in 2016
Mik Scarlet Leading disabled broadcaster and journalist, actor and musician. Mik is a disability right campaigner. Professional access and inclusion expert. UNICEF award for working with disabled children.
Saba Salman is a freelance social affairs journalist and regular writer for the Guardian. She has reported on equality and diversity issues for more than 20 years; as a reporter on London local papers, an Evening Standard correspondent, a freelance feature writer for women’s magazines and a writer on housing and welfare for specialist weekly publications.
Saba’s particular focus is the UK’s overlooked population of 1.5m people with learning disabilities. Saba volunteers as a trustee of the charity Sibs, which supports the siblings of disabled children and adults, and has a younger sister with a learning disability.
Recent articles on learning disability include an investigation into the thousands of people languishing in long-stay institutional care, the need for new laws so people can challenge decisions about their care, and a focus on equal employment opportunities.
Saba is currently developing a book, Made Possible, a collection of essays by high-achieving people with learning disabilities https://unbound.com/books/made-possible
Twitter @Saba_Salman
Guardian website https://www.theguardian.com/profile/sabasalman
Personal website http://sabasalman.com/
The Social Issue blog http://thesocialissue.com/
Samanth Renke
Lancashire born actress and public speaker Samantha Renke who currently resides in east London. Former teacher and trustee for the brittle bone society Renke moved to London five years ago to peruse a career in acting. Making her debut in indie film little Devil Renke won best actress at the LA diversity film festival. Since little devils success Renke has featured in a number of projects including last years groundbreaking Maltesers Advert featuring disabled actors. Supporter of the disability charity SCOPE and patron of Head2Head Theatre company Samantha can be seen on a number of television programs speaking out on disability equality. Regular blogger for the huffington post and lifestyle columnist for Pos'Ability magazine. As a self proclaimed fashionista samantha loves finding a bargain down brick lane or on eBay and would love to have her own petite fashion brand in the future , she is an a campaigner for better representation of disability within the fashion industry and has recently become involved with DIfa charity organisation which ushers for equality within the fashion world. Currently filming with the Huffington Post on their daily online series The New Activist.
Leethen Bartholomew
Leethen is a qualified social worker with 18 years’ experience at both an operational and strategic level. He currently works for the Social Care Institute for Excellence (SCIE) as a Practice Development Manager. Before joining SCIE, Leethen worked as a probation officer and then as a frontline social worker. Leethen then became the Community Partnership Advisor for a Local Safeguarding Children Board (LSCB). This role focused on improving the awareness, skills and knowledge of professionals on issues related to Female Genital Mutilation, ‘honour’ based violence, forced marriage, children abused through faith and belief, child trafficking/modern slavery, private fostering and radicalisation.
Leethen is currently pursuing a PhD at the University of Sussex. His research is a retrospective study on adults accused of being possessed or labelled a witch during their childhood. The research specifically focuses on the impact of an accusation on those accused and their siblings. There is also some focus on the role of professionals, community and faith leaders in safeguarding these groups of children.
Sarah Rennie
Sarah is a member of the steering group of Sisters of Frida CIC, an experimental collective of disabled women. Professionally, she is an accessibility and inclusion consultant and former property litigation solicitor. Within Sisters of Frida, a voluntary role, she co-leads on strategy and speaks at many events around the country on issues affecting disabled women. Sarah has just returned from speaking at the UK review by the UN Committee on the Convention of the Rights of Persons with Disabilities. She is also vice-Chair of Birmingham's Access Committee.
Isabelle Garnett
Isabelle is the mum of two extraordinary young people, one of whom has autism and other complex co-morbidities. She has decades of experience in navigating the labyrinth of education, social care and health services, most recently fighting to get her son out of an acute treatment unit and to have a positive and fulfilling life in the community.
Isabelle holds a Post Graduate Diploma in Autism Education and has been the Lead Practitioner for Autism in a Federation of six mainstream primary schools, providing reactive and proactive support, and managing its autism support team.
Isabelle has experience campaigning and working with the media (television, radio and press) and charities (such as Challenging Behaviour Foundation, Young Minds and Mencap) trying to achieve meaningful and positive change for people with autism, learning difficulties or both, who are still living in acute treatment units (ATUs).
Clenton Farquharson
Clenton has extensive knowledge around health and social care, particularly in relation to equality , human rights and co-production due to both personal and professional experience.
Clenton is Chair of the Think Local, Act Personal programme board. He is also a member of the Coalition for Collaborative Care Co-production Group, which brings together people, including people with long-term conditions, and organisations from across health and social care. Clenton is the trustee of In Control which is a national charity working for an inclusive society where everyone has the support they need to live a good life and make a valued contribution.
Clenton is Director of Community Navigator Services CIC, which is a Disabled People's User Led Organisation and is one of eight Fellows that act as an Skills for Care Ambassador, supporting, developing and maintaining relationships between Skills for Care and social care experts.
Clenton was awarded an MBE for services to people with disabilities in the 2014 Queen's Birthday Honours List.
Steve Judge
Steve Judge's life was turned upside down following a near fatal car accident resulting in both legs being crushed and being told that he may never walk again.
Steve didn’t lean on his excuses but instead set goals and worked towards his aspirations with drive, motivation and commitment. Through years of rehabilitation and training he eventually represented Great Britain as a disabled athlete.
Through seizing opportunities and living life with no regrets he eventually achieved World Championship status in Paratriathlon (swim, bike and run).
Steve continues to work towards new aspirations in his life and his business ‘i.Nspire’ through delivering workshops, keynote speeches and projects with his ongoing mission of helping people, inspiring others and motivating many.
Dan White - Artist, columnist, writer, ambassador, global speaker on inclusion NDA finalist for positive disability role model and creator of the department of ability.
Ashley Stephen is the co-founder of Disabled Survivors Unite, an activist organisation creating change for disabled survivors of abuse and sexual violence. Their work focuses on campaigning, working with frontline and support services around disability access, and running a project that allows survivors to share their stories anonymously. Ashley also regularly speaks at events on issues affecting disabled survivors and has given evidence on this at a hearing in the European Parliament
Presentations and Panel Discussions:
· Convention on the Rights of Persons with Disabilities (CRDP) what the reality is in UK
· Recognising Multi discrimination and the role of CRPD and Equality Act 2010 Include Me TOO
· Inclusive technology supporting Independent Living, Support and Access
· Building stronger foundations for Disability Inclusion
· Ending violence, abuse and harmful practices against disabled children and adults
· How can we ensure we have disability inclusive implementation of the Global Sustainable Development Goals.
Workshops:
Ø Supporting the rights and participation of disabled children, young people and adults
Ø Convention on the Rights of Persons with Disabilities – Improving implementation and reducing inequalities
Ø Addressing Health inequalities for Learning Disabled and Autistic persons - NHS
Ø Increasing opportunities and choices to disabled persons inclusion and contribution towards sustainable economic growth and access to employment
Ø Building a disability inclusive, safe and accessible society with inclusive transport and public spaces.
What is the World Health Innovation Summit and Why is It So Successful?
Established in 2015 the World Health Innovation Summit is now engaged in over 20 countries. Its two Cumbrian Summits had 40 million social media imprints worldwide. Tested and now being adopted in cities across the UK— Carlisle, Manchester, Birmingham, Nottingham, Newcastle, Cornwall, and Fylde – WHIS is now actively engaged with growing in-country networks in India, Thailand, the Philippines, Greece, Brazil, Kenya, Ghana, Sweden, Japan, and New Zealand. WHIS won the Carlisle Living Award Innovation Award and Special Recognition Award at the Zenith Global Healthcare Awards in 2016.
WHIS builds financially self-sustaining infrastructures focused on the health, vitality, and wellness of local communities around the world. Designed and carried out by local innovators and entrepreneurs, WHIS’ communities address local needs and honor local innovators and entrepreneurs, while leveraging WHIS’ experience, financial and other resources, and global networks.
The linchpin of the WHIS model is generosity and strategic trust. In practical terms WHIS’s successes to date can be attributed to the effective implementation of several social innovations.
Building Local Community Value. The WHIS process is a fusion of local and global, in-person and online, collaboration. It identifies, highlights, and engages innovators and entrepreneurs involved in community health, vitality and wellbeing to come together in a Summit that showcases, and for the first time encourages creative synergies among them in an active dialogue with the entire community. WHIS connects these resources to its global network and markets, and introduces the most relevant products and services to the local community. This process produces a surplus that is then paid forward to the local community in terms of financial support and the creation of new well-paying jobs (“innovators for health”). Local communities around the world are supported by the WHIS’ expanding global network.
By Julian Gresser, Chairman Global Alliances
Who attends World Health Innovation Events:
- Health care staff
- Health professionals (public and private sector)
- Members of the public
- Patients
- Social care providers
- Philanthropist's
- Business communities
- Housing development and residential planners (Smarter cities agenda)
- Policy makers
- Researchers
- Entrepreneurs and innovators
- Voluntary and community workers
- Artists, architects, musicians and designers
- Charities
- University academics
- Students
- Sports enthusiasts
- Alternative therapy practitioners
- Digital technology
- Social media experts
- Public health specialists
WHIS purpose - WHIS Ambassadors - WHIS Team
*Full programme to be published and please note the above is subject to change